Pediatric cardiologist surgeon - expert experience
I know this is a cat forum, but I figure it's worth a shot!
Anybody know a really, and I mean REALLY good pediatric cardiologist surgeon?
Mine has sent my records to Stanford, Mayo Clinic and Boston...all three (four if you include the hospital I go to anyway) were reluctant/refused to fix my clunky ticker. I realize I'm not my doctor's only patient, so he really can't spend time focusing on just my case... which is why I figure maybe anybody else would just happen to know more sources I can check out.
I go to University of Utah hospital, which is usually ranked high in cardiology stuff (most teaching hospitals are most up-to-date with new methods/technology).
The problem is that my heart has so many deformities, that they end up working together! Yes, my heart works, but it's weak and doesn't work properly. My doctor said that unless it's done very carefully, if they try to fix one deformity, that will make it so another one doesn't work, as they're all tied together all weird-like. The plan, for now, is to just wait until my heart totally konks out and get a transplant.
So while I'm not gonna hold my breath about getting it fixed, couldn't hurt to at least see if it's possible somehow. Besides, while having a "good" heart would be nice, I really don't look forward to all the anti-rejection meds and restrictions of lifestyle associated with them. Not that this should happen for another 10+ years or so, though.
Yes, I can still get out and do things, but it's becoming increasingly difficult. I can't even go up one flight of a dozen stairs now, without feeling like my chest is going to explode, and even lugging in a few bags of groceries gets me all tuckered out, and same with vacuuming - I can do about half a room, before I stop and need a nap! Plus I have random arrhythmias that feel like heart attacks (sore left arm, headache, cold sweats, dizzy, etc.)... and they don't want to try to fix that either, since I've had so many other arrhythmia fixes that they don't want to put too much scar tissue on my heart and make it even worse.
Nothing right now is life threatening, just inconvenient/uncomfortable/annoying. And I'm not trying to complain (like I said, I can still go out and do stuff...if I pace myself slowly), just stating the situation.
So I figure no harm in hoping... won't break my heart (it already is! HA HA) if nothing turns out from this.